Mikaela had her eye surgery on July 18th and is doing great! The surgery that was performed on her was called Strabismus.
It was her left eye that would pull to the side when she was tired, but
to make sure her eyes would be symmetrical, they did both eyes. It will
take up to 6 weeks healing time.
also went back to Cedar Sinai to see Dr. Graham who is a Geneticist,
referred to us by Dr. Hall. We were really looking forward to this
appointment in hopes that they would tell us what exactly Mikaela has
and why. Well, we found out what she has but there is no definitive
reason as to why she has it. We brought our briefcase full of every
paper ever written up about her and all the tests that were performed
since she was born. The doctors reviewed everything, researched their
records of diseases and no one matches up to Mikaela's exact condition
none of her conditions link to one another. Dr. Graham told us there are
only two reasons he could think of as to why this would happen. One, I had
a virus or infection (none were found). The second reason would be
that Mikaela was a twin. He told us that 10% of
twins do not make it past 8 weeks. It's called Vanishing Twin Syndrome. What happens is when one twin dies,
the water within the twin's tissues, the amniotic fluid, and the
placental tissue may be absorbed through the other twin and can cut off
the blood supply, which would cause Mikaela's Amyoplasia Arthrogryposis, Gray Matter Heterotopia and Ectopic
Pituitary Tissue (Extra tissue surrounding her pituitary gland).
As of now, we do not have an answer as to why any of this has happened. Twins do run on both sides
of Murad's family, and it does bring joy to our hearts knowing Naomi came so quick after Mikaela, but again - we
do not know for sure.
We will be seeing an Endocrinologist at
the end of August to have Mikaela's hormone levels checked. Because of
the extra tissue on her Pituitary Gland, Dr. Graham believes this is why
Mikaela is so small. I will update everyone once we know more.
Mikaela will also be getting
lots of new therapies to help her reach new goals. A few doctors have
noticed that Mikaela's ankles are low toned, so she will be getting AFO's very soon. AFO's with help Mikaela gain balance and support her so she can start taking those first steps!
We also just got back from the 6th Annual AMC Convention! It was held in Kansas City, MO. To see more about it, please visit AMC Convention 2011.
And when you have the time, please visit the new page - The Sweetest Gift. You'll be thankful you did.