Mikaela Frances Jane

A website for our family and friends to keep up with Mikaela and her Arthrogryposis.
Also to help families find their way through this journey.

"Strength does not come from physical capacity. It comes from an indomitable will." - Gandhi

What makes Mikaela so cute, you ask?


She lacks her biceps, which has made the curvature in her wrists, narrowing her shoulders, causing lack of basic movement.

Gray Matter Heteratopia:
Your brain is made up of white matter and gray matter. This is where in developement, the gray matter can be located in the wrong part of the brain. In Mikaela's case, it took her longer to reach her milestones. Instead of the neurons connecting without difficulty, they took a little longer and had to "go around the block".

Pituitary Dwarfism:
Mikaela's pituitary was not formed properly, which made her stop growing around the age of two and a half. She takes growth hormones daily, and we'll get her as tall as we can! 

The cause of this? She was a twin.
Vanishing twin syndrome happens to about 10% of twins, before the 8th week of pregnancy. When debris of one passes, causing blood flow to be blocked, sporadic things happen.

All links to learn more about Mikaela are below!

And don't forget to check out 
MikNao Dance Studio
A dance studio inspired
by our two daughters,

Mikaela and Naomi.
Created by Mom.
Now continued by two amazing human beings!